"This volume is a comprehensive collection of articles representing a wide range of disciplines. . . it will be a valuable addition to the bookshelves of families, medical staff, educators, and researchers." ( American Journal of Medical Genetics , August 15, 2004)
"This book will be of great interest to anyone wanting to have the latest information about this genetic disorder. . ." (www. family2000. org. uk, 9 September 2002)
". . . puts foward some of the visions and thoughts in an optimistic way and is therefore recommended. . ." (Int Jnl of Adolescent Medical Health)
". . . puts forward some of the visions and thoughts in an optimistic way and is therefore recommended. . ." (Int Jnl of Adolescent Medical Health, Vol. 15, No. 1, 2003)
"I. . . consider a copy of this book a must for every institutional and personal library." (Journal of the National Medical Association, March 2003)
". . . exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers. . ." ( American Journal of Human Genetics , Vol. 72, 2003)
". . . exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers. . ." ( American Journal of Human Genetics , Vol. 72, 2003)
". . . a terrific compendium of the wide array of topics. . . whatever the challenges that lie ahead. . . we are much better prepared by the information and vision provided by this excellent book." ( Archives of Pediatrics and Adolescent Medicine , May 2003)
". . . a useful reference tool for families and service providers." ( Human Genetics , No. 113, 2003)
